Literasi Kesehatan Orang Tua dan Pertimbangan Pemilihan Layanan Kesehatan bagi Anak dengan Kanker
DOI:
https://doi.org/10.25078/jyk.v8i2.5558Keywords:
Literasi Kesehatan Orang Tua, Layanan Kesehatan, Anak Dengan KankerAbstract
Anak yang didiagnosis kanker memerlukan perhatian dan keterlibatan penuh dari orang tua. Tingkat literasi kesehatan orang tua memegang peran penting, terutama dalam pengambilan keputusan yang berkaitan dengan pelayanan kesehatan yang akan diterima oleh anak. Penelitian ini bertujuan untuk mengetahui tingkat literasi kesehatan orang tua serta pertimbangan dalam mengakses layanan kesehatan untuk anak dengan kanker. Penelitian ini merupakan penelitian kuantitatif dengan desain deskriptif dengan pemilihan sampel menggunakan non-probability sampling dengan jenis purposive sampling dengan 60 orang tua sebagai responden. Pengumpulan data menggunakan kuesioner data demografi dan Health Literacy Questionnaire (HLQ). Hasil dari penelitian ini adalah orang tua memiliki literasi kesehatan dengan kategori baik sebanyak 55% dan kategori kurang sebanyak 45%. Adapun pertimbangan dalam pemilihan layanan kesehatan pada anak dengan kanker mayoritas orang tua memilih reputasi (88.3%), alur asuransi (78.3%), jarak (76.7%) dan petugas kesehatan (68.3%). Sebagian besar orang tua memiliki tingkat literasi kesehatan yang tergolong baik. Namun demikian, hampir separuhnya masih menunjukkan literasi kesehatan yang rendah. Kondisi ini menunjukkan pentingnya upaya berkelanjutan untuk meningkatkan literasi kesehatan di kalangan orang tua anak dengan kanker. Diharapkan penyedia layanan kesehatan dapat melakukan strategi efektif yang tidak hanya meningkatkan literasi kesehatan orang tua, tetapi juga mengidentifikasi faktor-faktor yang mempengaruhinya, sehingga orang tua dari anak dengan kanker mampu berperan aktif dalam pengelolaan kesehatan anak mereka.
References
Aygun, O., & Topcu, M. (2023). The relationship between parental health literacy levels and anthropometric measurements of children in Turkey. BMC Pediatrics, 23(1), 559. https://doi.org/10.1186/s12887-023-04385-4
Bo, L., Wang, Y., Li, Y., Wurpel, J. N. D., Huang, Z., & Chen, Z.-S. (2023). The Battlefield of Chemotherapy in Pediatric Cancers. Cancers, 15(7). https://doi.org/10.3390/cancers15071963
Chasanah, N., Pranoto, Y. K. S., & Formen, A. (2024). Peran dan Hambatan Orang Tua dalam Pengasuhan Anak Penderita Kanker: Systematic Scoping Review. Jurnal Kesehatan Vokasional, 9(3), 240–254. https://doi.org/10.22146/jkesvo.97619
File, W., Mark, M., & Pegram, L. (2025). The primary care providers role in high-risk pediatric cancer care. Current Problems in Pediatric and Adolescent Health Care, 55(8), 101824. https://doi.org/https://doi.org/10.1016/j.cppeds.2025.101824
Ganguly, S., Singh Sra, M., Sasi, A., Singh, R., Verma, V., Sharma, S., Lohiya, A., Das, A., Pushpam, D., & Bakhshi, S. (2025). Prevalence and Perception of Complementary and Alternative Medicine Use Among Childhood Cancer Patients: A Mixed-Methods Study. Pediatric Blood & Cancer, n/a(n/a), e31975. https://doi.org/https://doi.org/10.1002/pbc.31975
Gani, N. F., Yustilawati, E., Fitriani, A., & Hadrayani, E. (2023). Measuring Health Literacy about Vaccination Covid-19 in Community of South Sulawesi , Indonesia : Survey using the HLQ Questionnaire. 36(2), 190–193.
Gibson, F., Kumpunen, S., Bryan, G., & Forbat, L. (2018). Insights from parents of a child with leukaemia and healthcare professionals about sharing illness and treatment information: A qualitative research study. International Journal of Nursing Studies, 83, 91–102. https://doi.org/https://doi.org/10.1016/j.ijnurstu.2018.04.008
Greenzang, K. A., Kelly, C. A., Al-Sayegh, H., Ma, C., & Mack, J. W. (2021). Thinking ahead: Parents’ worries about late effects of childhood cancer treatment. Pediatric Blood & Cancer, 68(12), e29335. https://doi.org/10.1002/pbc.29335
Handayani, K., Susilawati, D., Sutaryo, Mulatsih, S., Kaspers, G. J. L., Mostert, S., & Sitaresmi, M. N. (2022). Health-care providers’ perception and communication about traditional and complementary medicine in childhood cancer in Indonesia. Pediatric Hematology Oncology Journal, 7(1), 4–9. https://doi.org/https://doi.org/10.1016/j.phoj.2022.01.003
Keith, K. E., Wadhwa, A., York, J., Fazeli, P. L., Bhatia, S., & Landier, W. (2023). Health Literacy in Parents of Children Newly Diagnosed With Cancer and Comprehension of Key Concepts Related to Their Child’s Care. Journal of Pediatric Hematology/Oncology Nursing, 40(4), 235–244. https://doi.org/10.1177/27527530221140076
Liu, X., Fluchel, M. N., Kirchhoff, A. C., Zhu, H., & Onega, T. (2023). Geographic Access to Pediatric Cancer Care in the US. JAMA Network Open, 6(1), e2251524. https://doi.org/10.1001/jamanetworkopen.2022.51524
Ministry of Health of the Republic of Indonesia. (2024). Rencana kanker nasional 2024-2034. Kementrian Kesehatan Republik Indonesia, September, 132. https://www.iccp-portal.org/sites/default/files/plans/Rencana_Kanker_Nasional_2024-2034.pdf
Nair, M., Paul, L. T., Latha, P. T., & Parukkutty, K. (2017). Parents’ Knowledge and Attitude Regarding Their Child’s Cancer and Effectiveness of Initial Disease Counseling in Pediatric Oncology Patients. Indian Journal of Palliative Care, 23(4), 393–398. https://doi.org/10.4103/IJPC.IJPC_83_17
Nurhidayah, I., Nurhaeni, N., Allenidekania, A., Gayatri, D., & Hendrawati, S. (2024). A Qualitative Study To Explore the Impact of Having Children with Cancer and Parental Adjustment. Indonesian Journal of Cancer, 18(1), 36–46. https://doi.org/10.33371/ijoc.v18i1.1048
Omer, T. Y. (2024). Impact of Childhood Cancer on Family Functioning and Family Quality of Life in the Western Region of Saudi Arabia. Nursing Research and Practice, 2024(1), 6667978. https://doi.org/https://doi.org/10.1155/2024/6667978
Pagesa, S. B. F., Harisa, A., Nurdin, N., Syafar Sangkala, M., & Malasari, S. (2022). Health Literacy Level of Nursing Students in the Islamic Colleges of Makassar City. Indonesian Contemporary Nursing Journal, 6(2), 62–69.
Pearson H, H., Bryan, G., Kayum, C., Gibson, F., & Darlington, A.-S. (2022). Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review. BMC Pediatrics, 22(1), 595. https://doi.org/10.1186/s12887-022-03635-1
Ritter, J., Allen, S., Cohen, P. D., Fajardo, A. F., Marx, K., Loggetto, P., Auste, C., Lewis, H., de Sá Rodrigues, K. E., Hussain, S., Omotola, A., Bolous, N. S., Thirumurthy, H., Essue, B. M., Steliarova-Foucher, E., Huang, I.-C., Meheus, F., & Bhakta, N. (2023). Financial hardship in families of children or adolescents with cancer: a systematic literature review. The Lancet. Oncology, 24(9), e364–e375. https://doi.org/10.1016/S1470-2045(23)00320-0
Roser, K., Erdmann, F., Michel, G., Winther, J. F., & Mader, L. (2019). The impact of childhood cancer on parents’ socio-economic situation-A systematic review. Psycho-Oncology, 28(6), 1207–1226. https://doi.org/10.1002/pon.5088
Salek, M., Porter, A. S., Maradiege, E., Dolendo, M. C. J., Figueredo, D., Geriga, F., Gunasekera, S., Kizyma, R., Nguyen, H. T. K., Nzamu, I., Raza, M. R., Rustamova, K., Sari, N. M., Rodriguez-Galindo, C., Graetz, D., Bhakta, N., & Kaye, E. C. (2024). Exploring treatment decision-making at diagnosis for children with advanced cancer in low- and middle-income countries. Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer, 32(11), 753. https://doi.org/10.1007/s00520-024-08951-z
Sari, N. M., Devansyah, S., Modjaningrat, I., Suryawan, N., Susanah, S., Rakhmillah, L., Wahyudi, K., & Kaspers, G. J. L. (2023). Type of cancer and complementary and alternative medicine are determinant factors for the patient delay experienced by children with cancer: A study in West Java, Indonesia. Pediatric Blood and Cancer, 70(4), 1–11. https://doi.org/10.1002/pbc.30192
Silva, D. B. da, Pianovski, M. A. D., & Costa, M. T. F. da. (2024). Childhood and adolescent cancer: early diagnosis challenges. In Revista da Associacao Medica Brasileira (1992) (Vol. 70, Issue suppl 1, p. e2024S128). https://doi.org/10.1590/1806-9282.2024S128
Tan, C. E., Lau, S. C. D., Abdul Latiff, Z., Lee, C. C., Teh, K. H., & Mohd Sidik, S. (2024). Parents of children with cancer require health literacy support to meet their information needs. Health Information and Libraries Journal, 41(3), 267–282. https://doi.org/10.1111/hir.12491
Uner Asil, E., Aygun, O., Duman, A., & Gungor, N. (2025). The relationship between parental health literacy and primary school students’ anthropometric measurements and general health status. BMC Pediatrics, 25(1), 125. https://doi.org/10.1186/s12887-025-05445-7
World Health Organization. (2024). Health literacy. https://www.who.int/news-room/fact-sheets/detail/health-literacy
World Health Organization. (2025). Childhood cancer. https://www.who.int/news-room/fact-sheets/detail/cancer-in-children
Yi, J., Kim, M. A., Sang, J., & Gonzalez-Pons, K. M. (2022). How Does Social and Work Life Change for Fathers of Children With Cancer? SAGE Open, 12(4), 1–11. https://doi.org/10.1177/21582440221130040















